How does it work
01
Capture
Save the little moments that are easy to forget
Symptoms, changes, questions, school notes, clinic letters, hard days, milestones, and things someone said you might need later.
Voice Memo
Written Notes
Documents
02
Structure
Turn scattered updates into a clearer care picture
Rarevia helps organise messy inputs into a living view of what has changed, what is ongoing, what needs follow-up, and what may become useful later
Timeline
Care Summary
Evidence
03
Explain
Understand what may need attention
For rare conditions, families are often left wondering which changes matter. Rarevia helps surface practical patterns, questions to ask, and things worth monitoring.
Watchouts
Questions
Patterns
04
Prepare
Prepare for the next conversation
Whether it is a clinic appointment, school meeting, funding form, benefits application or specialist enquiry, Rarevia helps organise what to say, what to bring, what to ask, and what still needs chasing.
Appointments
School meetings
Funding applications
05
Reuse
Reuse the story when it counts
Turn what you have already captured into summaries, evidence, questions, route notes, and practical context for clinicians, schools, charities, funders, and support services.
Watchouts
Questions
Patterns
How does it work?
My working process revolves around an approach aimed at maximizing productivity and creativity with clarity and focus. It begins with thorough research and planning, where I gather relevant information and outline key objectives.
01
Keep the story of what's happened
Save the little moments that are easy to forget
Save the little moments that are easy to forget
Pain Care
Joint Relief
Therapy Plan
01
Keep the story of what's happened
Save the little moments that are easy to forget
Save the little moments that are easy to forget
Pain Care
Joint Relief
Therapy Plan
01
Keep the story of what's happened
Save the little moments that are easy to forget
Save the little moments that are easy to forget
Pain Care
Joint Relief
Therapy Plan
01
Keep the story of what's happened
Save the little moments that are easy to forget
Save the little moments that are easy to forget
Pain Care
Joint Relief
Therapy Plan
01
Keep the story of what's happened
Save the little moments that are easy to forget
Save the little moments that are easy to forget
Pain Care
Joint Relief
Therapy Plan
For charities, advocates, and rare disease organisations
Rarevia is being shaped with families and the organisations that support them. If you work with rare genetic disease patients or carers and want to explore signposting, partnership or future collaboration, we’d love to hear from you.