A living memory for rare disease families
A living memory for rare disease families
Rarevia is a smart care companion that helps families capture what happens, make sense of changes, and prepare with the right context when it counts.
Rarevia is a smart care companion that helps families capture what happens, make sense of changes, and prepare with the right context when it counts.
School Updates
Documents
Hard Days
Treatment Options
Appointments
Referrals
Funding Forms
Symptom Changes
Episodes
Symptom Changes
Funding Forms
Referrals
Appointments
Treatment Options
Hard Days
Documents
School Updates
Episodes
OUR MISSION
We see life after diagnosis through the scattered pieces families manage every day. Rarevia turns those pieces into a living care memory families can understand, prepare from, and use again.
School Updates
Documents
Hard Days
Treatment Options
Appointments
Referrals
Episodes
Symptom Changes
Funding Forms
How it works
How it works
How it works
Say it whenever it comes out
In the car park, at midnight, halfway through something else. Talk for a minute or type a line.
Say it whenever it comes out
In the car park, at midnight, halfway through something else. Talk for a minute or type a line.
Say it whenever it comes out
In the car park, at midnight, halfway through something else. Talk for a minute or type a line.
Nothing is saved until you say so
Rarevia shows you what it picked out, in your own words. You keep it, change it, or bin it
Nothing is saved until you say so
Rarevia shows you what it picked out, in your own words. You keep it, change it, or bin it.
Nothing is saved until you say so
Rarevia shows you what it picked out, in your own words. You keep it, change it, or bin it.
It does the sorting
Rarevia puts each line in a group. A concern, a treatment, an appointment, with the date. Then added to the timeline and updates the summary.
It does the sorting
Rarevia puts each line in a group. A concern, a treatment, an appointment, with the date. Then added to the timeline and updates the summary.
It does the sorting
Rarevia puts each line in a group. A concern, a treatment, an appointment, with the date. Then added to the timeline and updates the summary.
How things are now, all in one page
Current concerns, treatment, symptoms, funding status. Everything you keep updates the summary. Download it as one PDF for the appointment, the school meeting, the benefits form.
How things are now, all in one page
Current concerns, treatment, symptoms, funding status. Everything you keep updates the summary. Download it as one PDF for the appointment, the school meeting, the benefits form.
How things are now, all in one page
Current concerns, treatment, symptoms, funding status. Everything you keep updates the summary. Download it as one PDF for the appointment, the school meeting, the benefits form.
"When did that start?"
Look it up by date, category or service. Or read the last three months at a glance.
"When did that start?"
Look it up by date, category or service. Or read the last three months at a glance.
"When did that start?"
Look it up by date, category or service. Or read the last three months at a glance.
Trusted info from sources we name
What published sources say, in their words, with the technical terms explained, organised by the things families ask about most. All in the app, not across a dozen open tabs.
Trusted info from sources we name
What published sources say, in their words, with the technical terms explained, organised by the things families ask about most. All in the app, not across a dozen open tabs.
Trusted info from sources we name
What published sources say, in their words, with the technical terms explained, organised by the things families ask about most. All in the app, not across a dozen open tabs.
What Rarevia gives back
What Rarevia gives back
Rarevia is being built to reduce the invisible work of holding everything together.
Rarevia is being built to reduce the invisible work of holding everything together.
Rarevia is being built to reduce the invisible work of holding everything together.
Less to hold in your head
Rarevia keeps memory of the small things as they happen, so they do not have to live only in your head.
Less to hold in your head
Rarevia keeps memory of the small things as they happen, so they do not have to live only in your head.
Nothing to recall in the room
You arrive with what you noted at the time, not what you can piece together under pressure.
Nothing to recall in the room
You arrive with what you noted at the time, not what you can piece together under pressure.
Somewhere solid to start
Working out which website to trust is a job in itself. The basics are already there, so you have something to build on when you talk to the team.
Somewhere solid to start
Working out which website to trust is a job in itself. The basics are already there, so you have something to build on when you talk to the team.
Things keep compounding
You do not have to keep it up. What you add this week is still there years from now, and worth more for everything you add after it.
Things keep compounding
You do not have to keep it up. What you add this week is still there years from now, and worth more for everything you add after it.
Why Rarevia Exists
Rachel Ho
Founder
Rachel Ho
Founder
Rachel has a background in Prenatal Genetics and Fetal Medicine, with early experience in the fertility industry and six years working in early-stage healthtech.
Rarevia began after seeing families close to her navigate rare genetic disease across different healthcare systems, including families affected by Spinal Muscular Atrophy (SMA) and Epidermolysis Bullosa (EB). The conditions were different, but the burden looked painfully similar:
Searching for reliable information, finding the right care, remembering what happened, organising documents, advocating for support, proving need, accessing funding, and adapting life around a condition very few people understood.
Rarevia is built to make that lifelong journey clearer, more organised and easier to carry.
Rachel has a background in Prenatal Genetics and Fetal Medicine, with early experience in the fertility industry and six years working in early-stage healthtech.
Rarevia began after seeing families close to her navigate rare genetic disease across different healthcare systems, including families affected by Spinal Muscular Atrophy (SMA) and Epidermolysis Bullosa (EB). The conditions were different, but the burden looked painfully similar:
Searching for reliable information, finding the right care, remembering what happened, organising documents, advocating for support, proving need, accessing funding, and adapting life around a condition very few people understood.
Rarevia is built to make that lifelong journey clearer, more organised and easier to carry.
Rachel has a background in Prenatal Genetics and Fetal Medicine, with early experience in the fertility industry and six years working in early-stage healthtech.
Rarevia began after seeing families close to her navigate rare genetic disease across different healthcare systems, including families affected by Spinal Muscular Atrophy (SMA) and Epidermolysis Bullosa (EB). The conditions were different, but the burden looked painfully similar:
Searching for reliable information, finding the right care, remembering what happened, organising documents, advocating for support, proving need, accessing funding, and adapting life around a condition very few people understood.
Rarevia is built to make that lifelong journey clearer, more organised and easier to carry.
Join the early interest list today
Join the early interest list today
Get early updates and be among the first to try Rarevia. We're also inviting a small group of families to try an early version and tell us what's missing.
Get early updates and be among the first to try Rarevia. We're also inviting a small group of families to try an early version and tell us what's missing.
Get early updates and be among the first to try Rarevia. We're also inviting a small group of families to try an early version and tell us what's missing.